Our life at home

Well, we have been home the longest time this year. I wish I could say we have stayed out of the doctors and all have been well, but I cant. Both kids have been really sick, fighting ear infections, etc. I have 5 doctors appointments this week for the kids. Will is having to do roughly 5 breathing treatments a day. We have an appointment with an ENT (who happens to be our pediatritions husband) to talk about putting tubes in his ears as he is having constant ear infections that antibiotics arent working on (they have had to resort to giving him shots) and it is causing him problems with breathing so we will see what he says on Thursday. Will has just been really fussy, screaming all the time and just so uncomfortable. It is so hard to see him still in so much pain.

It has been nice to be home and doing some semi normal things, like grocery shopping, sleeping in your bed without nurses coming in, eating anything but hospital food.

We are hanging in there, trying our best and just hoping spring comes soon and our kids will start to feel better very soon. And hopefully, one day get that thing that they call sleep. Hey, it could always be worse.... right? :)

A message from Will.....

He had a fun little time earlier and I caught it on
camera. This was the first day he has smiled since
surgery. So good to see him returning!

He was playing with his blanket. He loves having
blankets by his face.

Ignore the crazy lady! When I speak of him
not having mittens on his hands and his hands
being free, it is because we have had
his hands covered with socks to keep him
from pulling out his central line and feeding tube.
Hit the play button to watch.

Will pre and post surgery and Faith

The first 2 pics are him today 24 hours postop.
The green looking thing is a pacifier that the
doctors cut the tip out of to put the feeding tube
through, which is the yellow looking tube. That will
come off in 8 to 10 days to keep the tube from moving.
The little white patch underneath the tube is the
seperate incision that was made for the Nissen
surgery. On his shoulder is where the central line
is (IV access)


These 2 pics where taken of him on Sunday prior to
surgery.

This little thing is a medicine delivery system.
It is a automated thing that operates by itself. It
has a motion sensor and it opens doors by itself and
elevators by himself. It is so cute and the little kids love
it on the floor. (the door for the medicine is in the back of the train)

Faith LOVES elmo and has since learned how to say
elmo. As a suprise for her one night we got this HUGE elmo
from the gift shop downstairs as a special treat for
her. Needless to say she loved it!




Love this video and thought we would share!

Will was baptized

Will was baptized on January 29, 2009 at 2 pm. Due to his extened hospital stay and facing a 3rd surgery in his short little life we made the decision to have him baptized here in the hospital.

A few more pics of our life in the hospital

Faith eating her pizza (she loves pizza) and watching
Blues Clues.
This is Will with his feeding tube in his nose. We have socks
on his hands to keep him from pulling out the tube.

Will just chilling in his bed.

This is what his IV pole looks like. The orange

looking bag is his TPN. That is basically his food when he wasnt eating.

It has all nutrients and fats in there. The other bag is is feeding tube bag.

As his feeds increase the TPN will decrease and he will

eventually be off of the TPN. The pump on the top is

his feeding pump. That is similar to what we will be sent

home with.

This was Faith after we bribed her with ice cream

this past weekend.

If you are not on my email update list, and would like to be then please shoot us an email and we would be happy to add you. Thanks a million for all of the prayers. Love you all.

Starting 2009 with a BANG

The top pic was while we were waiting on a crib to
be brought into the room, he was in a big person bed.
He looked so cute and so pitiful all at the same time.
This was the first night.
The one below was after we got him settled into
a crib.

The above was taken on the first night. He

was very dehydrated and not feeling well at all.

The one below I just love. One of the people came

by with a wagon full of stuffed animals and they

gave him this little dog. He LOVES that thing.

He holds onto it and he loves sleeping with it.

The one below his him 4 days postop after his big

surgery. His first smile after his surgery. He is showing

off his battle wound. :)

Well, my friends and family you all know what has been happening in our lives, so I wont repeat it all. To say that our 2009 has started out with a bang is a understatement. I would never have imagined all that has taken place in the last 18 days and never thought on admission that we would STILL be here. But, Will has been named the mystery child, though they are slowly unraveling the mystery. We want to thank you for praying, thinking, caring and loving our family as we have gone through this. Having Billy and Will hospitalized at the same time was undescribeable. We love you all.